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Hi Friends, Welcome to the All About Home Link Party! This weekend we've been working on outdoor/porch cleanup. Power washing and preparing to paint. We've been hot and dry here, but it's supposed to rain tomorrow, so I'm hoping there's dry time for a quick cookout in the afternoon. Do you/did you have big plans for this weekend? Hope you're having a great holiday.
On a personal/blog note... Amber and I are going to take a break with the Link Party for the rest of the summer and come back with some great fall inspiration, refreshed and ready for the busiest time in blogland. Amber is still in the process of renovating her wonderful new/old home and has a move a bit later in the season.
Several weeks ago I mentioned the fact that I'd had a long waited for diagnosis of all the autoimmune neurological problems that I've been having for many years. We went to Mayo Clinic last fall, but they weren't sure of a diagnosis. My wonderful Internist went ahead and made the diagnosis in April of Myasthenia Gravis and is in the process of trying to find me a local neurologist who can supervise my health care.
Generalized MG is a relatively rare long-term illness that effects only about 20 people out of 100,000. It's a neuro-muscular disease similar to Multiple Sclerosis, and is hard to treat without many medication options. I have a lot of allergies and because of that I'm not eligible for any of the new infusion meds on the market. The immune system destroys the nerve/muscle junction receptors and causes severe muscle weakness and in my case trouble talking, swallowing, breathing and walking. Basically I wear out after a short time of physical activity. Hopefully soon, I'll get an evaluation and insight from a specialist, and get a better handle on managing this.
I'm being honest in saying this has been tough, but I'm determined to not let it control my life. So, a bit of a break is needed. You all know I love fall, and want to be able to enjoy it with you.
I'll still be blogging, but need to do it when I can take things slow and let creativity lead. So you'll still see me around, so please still drop by and catch up. Some of you who have been with me through the years know I've been through a lot of health stuff, and I'm still here. Thanks for being here, friends!
Amber from
Follow the Yellow Brick Home and I are so excited to be co-hosting this fun link party, that celebrates
"All Things Home". We love to see what
You are up to each week, so please join in
with your decor, seasonal fun, gardens, DIYs, recipes and more. We each pick
and share features each week, so be sure and visit both of us to check out the
weekly highlights.
This last week I shared my sitting area in the Garden Room decorated in patriotic color and the Holiday Cupboard.
Be sure and check out Amber's fun post for this week!
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This week we have some great DIYs that include beautiful paint techniques, using pressed flowers for art work, and a beautiful way to display dishes and platters. And who doesn't love a delicious chocolate cupcake? Okay if you don't, I'll be glad to eat yours...
from Regina at Saved from Salvage
from Michelle at Thistlekey Lane
from CoCo at The Crowned Goat
Christie's Mobile Home Diary
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Thanks Gals!
Vintage and Antiques, Garden and Outdoor Spaces, Seasonal Fun, DIY, Crafts, Recipes, etc.
We think Link Parties are a great way to share our homes and find
inspiration and ideas from like minded bloggers. From Room Reveals to your
latest Thrifting and Flea Market finds, we want you to join in the party
fun!
*Please include a courtesy link back to one of the hosts Common Ground & Follow The Yellow Brick Home at the end of your post so others know where to join in the
fun!
Oh Debra! I am so sorry to hear about your health situation but I fully understand. I am going through some of the same struggles, breaking up my projects into segments and taking many breaks. I don't have the strength and stamina I use to and I need to learn to live with my limitations, but I am also grateful to have something I can manage. I know it could be worse so I try to remain positive. Please take care of yourself and we will all be back to link up in the fall (my favorite too). I am glad you still will be posting when you can, since I love your style and it's always a delight to see your posts. Stay well my friend and thank you for hosting us. XO- MaryJo
ReplyDeletethanks so much MaryJo. Getting used to the changes in energy level and stamina have been so hard to deal with. It's so frustrating to want to do something and not being able to keep up with your own expectations. Thanks for sharing what you're dealing with. Take care of yourself and I so appreciate each week when you show up here!
DeleteI’ve been praying for you weekly for years and will continue to
ReplyDeleteGail, thankyou so very much! I so appreciate that and you sharing it with me. God definitely has carried me through!
DeleteI'm so glad you have a diagnosis, Debra!! That gives solid direction, at least! I'll miss the party but looking forward to fall too!! Take care and have a restful break!!
ReplyDeletethanks Julie, I plan on showing up to your Tuesday party. Hope you're having a good 4th week!
DeleteHave a happy Fourth of July!Wishing you the best
ReplyDeletethankyou Sandra!
DeleteDebra,
ReplyDeleteHappy July 4th!
Thanks again for hosting this charming party every week! I know how much time goes into doing so and I want you to know that it I truly appreciate it!! I hope you have a great week!
Hugs,
Deb
Debra,
ReplyDeleteI forgot to mention that I totally understand the need for taking a break to take care of yourself...I hope you find some kind of medication that will help you....We will all be back in the Fall and looking forward to what you and amber will be sharing and glad to party with the both of you again...
Hugs,
Deb
thankyou, Debbie. We always appreciate you joining in each week. Thanks for the encouragement, hope you're having a great weekend!
DeleteDebra, I hope you really enjoy a quieter Summer and a much needed break. I'll be thinking of you and hoping you find a wonderful doctor to help you through this next medical phase. Looking forward to your return in the Fall. Take care.
ReplyDeleteLynne
Hope and trust you have an awesome July 4th.
ReplyDeleteMy entries this week = 94+95lly
Enjoy your Summer vacation :-) I look forward to continuing to see all your decorations and vignettes, and the party returning later on.
ReplyDeleteAlexandra
EyeLoveKnots.com
OnRockwoodLane.com
So sorry to hear this news sweet friend. Please take all the time you need and take care of yourself.
ReplyDeleteDeeDee
Thank you so much for the feature this week Debra! Hope you enjoy your summer while you take a little break from the link party!
ReplyDeleteI know it must be a huge answer to prayer to finally have a diagnosis, Debra. It seems like you've been going through this for such a long time and I know it has not been an easy thing to do. I will continue to add my prayers to the others for strength, healing and wisdom in the days and months to come. Thank you for featuring my table this week and for always giving us a fun place to share. Sending you so many hugs and lots of love sweet friend, CoCo
ReplyDeleteI always look forward to your beautiful posts, sweet Debra...your decorating always inspires me, and I want you to know that I love everything you do. You are such an inspiration, and such a beautiful creative person...you just take it easy and rest...and just do what you can, when you can. Like you said, just let creativity flow when it flows and post when you can. Praying for you and your complete healing, in the name of Jesus. I know God has brought you a long way on your health journey. He has brought you this far, and He's not gonna let you down, He's going to come through again and again. I remember when you researched your condition and had to get the doctors to listen, and I believe God has given you insight and wisdom and now wise doctors to help you on your journey, and I know God will see you through. God bless you and keep you, sweet lady.
ReplyDeleteThank you so much for featuring my Summer Home Tour in your features! I am so honored that you would include me!
ReplyDeleteGood for you & Amber taking a break. I really hope you can find a neurologist who will be on the cutting edge of research and can help you, Debra.
ReplyDeleteYou will be in my thoughts and prayers Debra, sometimes taking a break is what we need. MS runs in my family, so I know a bit about it, but I have not actually heard of your diagnosis before, but it does sound like they share many similarities. Once upon a time, I worked in the rehab field and always found correlations in many of the folks' diagnosis's I would meet with. Through blogging, I have met many who have severe allergies (like myself), and have found many folks have autoimmune disorders that seem to go along with the allergies, or that is my take on things from sharing my stories and hearing others. I am always searching for answers when the medical field seems to fail me. Take care of yourself, I look forward to seeing you in the fall again!
ReplyDelete